In 1999, prominent Hollywood entertainment attorney Kenneth Kleinberg, founding partner at Kleinberg Lange Cuddy & Carlo, awoke in his hotel room in the South of France, where he was traveling on business, and noticed that his legs were badly swollen.
“I was there for four days and every day it seemed worse,” says Kleinberg, who represents some of the most notable names in the biz, including Jack Nicholson, Mick Jagger and J.K. Rowling.
“I hopped on a plane and went to see my regular doctor at Cedars-Sinai, who then sent me to see a nephrologist. I called someone I knew at Keck Medicine of USC and he said, ‘You have to go see Dr. Campese.’ At that point I think I had 50 pounds of fluid on me. I was like one of those toys where you put the garden hose in and fill it up with water and punch it. Dr. Campese examined me and he said, ‘I don’t care where you go — you can go back to Cedars, you can go here — but you have to be in the hospital today.’ ”
Diagnosed with a kidney disorder called minimal change disease, Kleinberg, Variety’s 2016 Power of Law honoree, spent five weeks at Keck Medicine of USC under the care of Dr. Vito M. Campese, chief of the division of nephrology at Keck School of Medicine. There was no known cause of the disease and treatment — dialysis primarily — was less than ideal.
“They got my kidneys working again and I went about my life and it was all like this horrible dream,” Kleinberg says.
|Kleinberg and UKRO doctors Nuria M. Pastor-Soler, Kenneth R. Hallows and Vito M. Campese
Jessica Chou for Variety
But almost one year later, as often happens with kidney disease, Kleinberg was again stricken, this time with focal segmental glomerulosclerosis, a far more serious malady and a leading cause of renal failure in adults.
“I kept thinking, ‘Oh my God, this is the year 2000 — medicine should have the answer to practically everything,’ ” says Kleinberg, who spent an additional 13 weeks clinging to life in the hospital and another six on dialysis before receiving a kidney transplant in 2007. “I started to talk to Dr. Campese about the state of research on kidney disease and, to my surprise, I came to learn that there was no significant research center in kidney disease in Los Angeles County.”
According to Campese, about 10% of Americans — up to 26 million individuals — suffer from chronic kidney disease, and most of those people will remain asymptomatic until the disease progresses to the point of kidney failure.
“One out of nine or 10 people in this country that have kidney disease don’t know that they have it,” Campese says.
More alarming, the median survival of a patient on dialysis is approximately five years, which is comparable to the survival rate of patients with metastatic lung cancer.
And yet, despite its prevalence and the fact that the American government spends upward of $80 billion a year to treat kidney disease in patients, only a tiny fraction of that amount is allocated for research.
Unlike high-profile maladies like cancer and AIDS, with celebrity spokespeople and flashy campaigns, kidney disease remains grossly underfunded and underserved in the media.
In 2002, determined to raise awareness of kidney disease and initiate a collective push for renal research, Kleinberg elicited the help of Campese and established University Kidney Research Organization, a nonprofit whose mission is to raise funds to support kidney disease research. In 2012 UKRO and Keck School of Medicine of USC announced their agreement to jointly establish the USC/UKRO Kidney Research Center.
Efforts are underway to raise the estimated $35 million-$50 million needed to complete the project (UKRO has made an initial $3.5 million pledge to support the establishment of the KRC).
“Ken is astonishingly persevering in this endeavor,” Campese says. “I rarely find people that are so persevering in pursuing their idea because after one or two years, they get tired. But (Ken) has been a workhorse and he keeps going. The goal is to make this the best center in kidney research on the West Coast.”
President and chairman of UKRO respectively, Kleinberg and Campese have recruited a team of advisers and researchers, including Dr. Kenneth R. Hallows, director, USC/UKRO Kidney Research Center, and chief, division of nephrology and hypertension, USC Keck School of Medicine, and Dr. Nuria M. Pastor-Soler, faculty research, USC/UKRO Kidney Research Center. Until her death in 2015, singer Natalie Cole, who also underwent a kidney transplant, sat on the UKRO board of directors.
|The Kidney Crisis in America|
|Kidney disease is a devastating malady that affects roughly 10% of Americans.|
|26m||Approximate number of Americans stricken with kidney disease|
|$80b||Approximate amount the U.S. Government spends on treating individuals with kidney disease|
|$3.5m||Pledged thus far to support the establishment of the USC/UKRO Kidney Research Center|
Per Kleinberg, in part due to the emphasis that UKRO has placed on research, the number of successful kidney transplants at USC Keck over a roughly nine-year period rose from around 40 to 158 in 2015.
“Having philanthropy and support for the UKRO is critical to make sure the researchers have the freedom to pursue innovative novel ideas that may move the field forward,” Hallows says.
“One of the other great accomplishments of UKRO is that the profile of kidney doctors has risen,” adds Pastor-Soler. “One of the big problems for the general U.S. population is that there’s a shortage of kidney doctors and a shortage of kidney providers. Nobody wants to become a kidney doctor, but with the support of the UKRO that is starting to change. ”
For Kleinberg, involved in myriad pro bono activities — for several years he was active in the L.A. chapter of the NAACP Legal Defense and Education Fund and has been a trustee of the California Science Center in Exposition Park since 2014 — his nearly five-decade-long career as a lawyer continues to be “stimulating” and “allow (him) the opportunity to be creative,” but it’s through his work with UKRO that he cultivates deeper meaning.
“I’m very acutely aware of the fact that I am alive because of all this research that preceded me,” says Kleinberg. “Now I want to develop a Hollywood entertainment industry committee in support of kidney disease as a national medical priority so that everybody in the world can live a better life — happier and healthier.”
KLEINBERG’S CAREER HIGHLIGHTS
Kenneth Kleinberg of Kleinberg Lange Cuddy & Carlo is one of the most renowned entertainment attorneys in Hollywood, working with long-time clients such as J.K. Rowling, Jack Nicholson, Mick Jagger, Keith Richards, Toby Keith, legendary animator Glen Keane, Douglas Trumbull and directors Alejandro Amenabar and Claude Lelouch. Following are some of his recent career highlights.
Harry Potter Theme Park Attractions
Together with J.K. Rowling’s London agent Neil Blair, Kleinberg provided advice and counsel to Rowling regarding transactions in which some of the Harry Potter theme park attractions at Universal Studios Orlando were licensed via Warner Bros. for replication at Universal Studios Hollywood and at a new theme park being constructed by Universal in Beijing.
Kleinberg represents Jagged Films, Mick Jagger and Victoria Pearman (producers) and negotiated their deal with HBO and Martin Scorsese for the TV series “Vinyl.”
Kleinberg represents Thunder Agency LLC, which is producing a superhero franchise based on the comic series “Thunder.”
George Orwell’s “1984”
Kleinberg is representing Gina Rosenblum in her deal to produce a remake of George Orwell’s “1984.”
Kleinberg has represented singer-songwriter Peter Cetera (former lead singer of Chicago) since 1973, and is handling a variety of active projects for him, including music publishing administration, recording and touring.
Kleinberg represented Alejandro Amenabar and Fernando Bovaira in the development and production of their new independent film “Regression,” a Canadian-Spanish co-production starring Ethan Hawke and Emma Watson that was released in the U.S. by the Weinstein Co. and worldwide through FilmNation.